About Me

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I'm Amber... Born July 15. I was born with a genetic disease called Cystic Fibrosis (CF). CF is a progressive disease of the lungs and also affects the digestive, reproductive, and endocrine systems. All my life I have been a fighter. I've had to fight for something most others don't even think about, to live and breathe from the day I was born. I'm stubborn and I can be a huge handful. I'm very strong willed, but easily pleased. I love putting a smile on peoples' faces and making them laugh. I believe in second, and sometimes third, chances. I wear my heart on my sleeve and I tend to trust too easily. My family and friends mean everything to me. <3  I try hard not to judge people because I hate when others judge me. I am who I am and that's all there is to it, but that doesn't mean I always like who I am...
 

Wednesday, June 18, 2014

100 Truths About Me :)

When we got married
100 Truths About Me: 
(I was really bored so I came up with 100 different things you may or may not know about me and my life.)
1.       My full name is Amber Rose Walker.
2.       I was born July 15, 1992 at 3:00pm.
3.       I’m married to Justin Walker.
4.       My maiden name is Zitzloff.
5.       Our anniversary is January 21, 2014.
6.       I’m an army wife.
7.       I have Cystic Fibrosis and Diabetes.
8.       I have two biological brothers, a foster brother, and three foster sisters: Nick, Lucas, Ryan, Stephanie, Hannah, and Kassy
9.       I was in foster care for six years.
10.   I have two dogs and a mini potbelly pig: Mator, Diesel, and Bacon
11.   I love anything artsy and creative.
12.   I earned my black belt March 8, 2008.
13.   Music is my life. Country is my favorite.
14.   I am Bipolar and I have Borderline Personality Disorder.
Mator sleeping on my lap
15.   I love to collect inspirational quotes and sayings.
16.   I like to read and write poetry.
17.   Pretzels are my favorite snack.
18.   I eat Mild Cheddar Cheese off the block.
19.   I pray to be able to have children one day.
20.   I love taking pictures and photography.
21.   Animals are my passion.
22.   I have 4 best/close friends.
23.   Facebook and Instagram are my addictions.
24.   My phone is my life line.
25.   I have a bucket list of 100 things I want to do before I die.
26.   My blood type is O Positive.
27.   I’ve had numerous blood transfusions.
28.   I’ve never traveled outside the United States.
29.   I am a very picky eater.
30.   My phobias are spiders and clowns.
Bacon sleeping with Mator
31.   Blue and Purple are my favorite colors.
32.   I am 5’3”.
33.   I prefer country living over city.
34.   I want to get a horse.
35.   I love to sing.
36.   2010 is my graduating year.
37.   I went to Annandale High School.
38.   I have two tattoos and hope to get more.
39.   I’m naturally a strawberry blonde.
40.   I was born in Minnesota and lived there for the first 21 years of my life.
41.   I moved to North Carolina in March 2014.
42.   I have an insulin pump.
video
43.   I used to be affected by self-harm. I have been cut free for 3 years!
44.   I love crime shows.
45.   My most addicted to games are 2048 and Candy Crush.
46.   I have had a feeding tube since I was 10 years old.
47.   Creating patterns and designs interest me.
48.   I’ve never met anyone famous.
49.   Mountain Dew is my “must have” beverage.
50.   At 6 weeks old, I was diagnosed with Cystic Fibrosis.
51.   I love tattoos and piercings.
52.   My beloved grandmother passed away November 20, 2012.
53.   I am a Christian.
54.   I am mostly an introvert.
55.   I graduated with honors.
56.   I am very passionate about the people and things I love.
57.   I’ve traveled to/through 28 out of the 50 states.
58.   The family dog has flown with me on an airplane.
59.   I’ve flown over 20 times.
60.   I cannot stand to wear matching socks.
61.   I’ve been trying for years to grow out my hair, but usually end up cutting it.
62.   I love to text message and type.
63.   Laughing is sometime I love to do.
My foster parents: Chad and Jennifer
64.   I’ve spent three Thanksgivings, two Christmases, two Valentines Days, a New Year, an Easter, and four birthdays in the hospital.
My first tattoo
65.   The entire 21 years I was in Minnesota, I only resided in one county, but four different cities and multiple different houses.
66.   I always sleep with my fan blowing.
Diesel <3
67.   Amby is my most used nickname.
68.   My zodiac sign is a Cancer.
69.   I write with my right hand, but do everything else with my left.
70.   I had a major abdominal/intestinal surgery done in August 2009. 
71.   My first family vacation was taken in2003 to Disney World, Florida.
72.   I’ve been in dance, gymnastics, baseball, karate, winter guard, and color guard.
73.   My junior year of high school, I rolled my dad’s pickup truck off a freeway bridge in a sleet storm.
74.   I like spontaneity.
75.   I don’t like excessive loudness.
76.   I am shy/quiet around new people or in larger groups.
77.   I love to make other people happy.
78.   I have a difficult time telling people no.
79.   I can be a sarcastic smartass.
80.   I’m sassy.
second tattoo in remembrance of grandma
81.   I love creative writing.
82.   Disney movies are my favorites.
83.   Cooking is not something I enjoy.
84.   I am OCD about certain things.
Me, Stephanie, Hannah, Kassy
85.   I hate making more than one trip when carrying or moving things.
86.   I love to shoot my bow.
87.   I have the iPhone 5s.
88.   Genetics/forensics is very intriguing to me. 
89.   I love babies.
90.   Juliana is my Goddaughter.
91.   Sometimes I tend to ramble when I talk.
92.   I often feel more strongly than I should about things.
93.   I tend to be overly self-critical and a perfectionist.
94.   Colorado is my favorite of the states.
95.   Addison Grace and Payton Ryan are the girl and boy names I have picked out for my children.
Juliana: my beautiful Goddaughter
96.   I am very opinionated when I have an opinion on something, otherwise I am extremely passive.
97.   T.V. rarely holds my attention.
98.   Death does not scare me at all.
99.   Reading is a favorite of mine.
100.  I love doing DIY projects.


O! I'm Positive!

Blood Type: O Positive
Hey y'all! I'm still in the hospital. I received a second embolization on Monday after major bleeding over the weekend which required a blood transfusion. The first embolization I had (last Monday) was successful; however, there were a few areas that were overlooked/missed which is why the second one was necessary.

Right after my second embolization
So far, I have not had anymore blood! Today I will begin slowly reintroducing my nebulized medications. If that goes well and does not promote hemoptysis, I will try a less intense airway clearance. Then we'll go from there. Ultimately, the goal is to have zero bleeding and having me return home either Thursday evening or Friday.

Justin came to see the evening
of my embolization.
I am hopeful that once I am feeling better, I will be able to have better control over my blood sugars again. Currently they are all over the place! I will have a sugar or 375 and a few hours later it'll be down to 30. I had a 26 two evenings ago. That was probably the worst feeling I've experienced in quite a while. I was extremely weak and tired, it was difficult to hold up my head, and on top of it all I was so nauseous that just thinking about putting anything in my mouth made me gag. I had to be given an amp of D50 to bring my sugar back up to 98.

I cannot wait to get home! I am so homesick this admission. I miss my puppies and my piggy SO MUCH! I miss sleeping in my own bed. Falling asleep and staying asleep are both extremely difficult in the hospital which makes me extremely tired throughout the day. I'll be most excited to get this IV out of my chest so I can take a LEGIT shower without worrying about getting my dressing wet!
Word I associate with
summer 2014
I love quote pictures.
Just doodles
Stencil Trace
To pass the time lately, I've been doing a lot of drawing and doodling. I've done so many things that I now need to replace all of my fairly new drawing pens. I'm waiting to see if my local craft store will have the ones I am looking for before I decide to order them off of Amazon. I also need to get another binder to hold my creations as the one I have is overflowing! It usually takes me a while to fill these binders up because I tend to be very self critical and somewhat of a perfectionist. I often times will make, what I feel, is a tiny mistake and then decide to start over completely even if I am nearly finished.
I don't really have one specific style of art that I stick to. I like to experiment with and practice other forms of art. Many times my works tell a story or describe an emotion. I've used art as a coping/distraction tool ever since I was little to ease boredom and work through my depression and mood disorders. I like to fill my hospital walls with my art work that I complete while inpatient. Most of the time I create inspirational quote pictures when I am in the hospital. My pictures at home are different combinations of quotes, emotions, and stories.

Another stencil

If y'all see anything you like or would like me to do something for you or someone you know, send me a message or comment below. Making things for other people is my favorite! Also, if you would like to see more of my work let me know as well. I can dedicate an entire blog post to things I've completed or that I am still working on. (This would also give me the push I need to organize the pictures I have shoveled into my art binder!)

This one is from a few months ago
Well, I guess that's about all I've got for now. I hope y'all have a blessed and fantastic day!

Amber

Wednesday, June 11, 2014

It's One Helluva Life

Hey y'all! Just updating on my current health status. After being discharged on IV antibiotics May 30th, I was admitted again via ER on June 5th due to massive hemoptysis. I was in ICU for 2 days and I am now on my regular "CF" floor. Over the past week, I have had several CT scans of my chest, ultrasounds of my arms, shoulders, neck, and legs, chest and abdominal x-rays, and a Bronchial Artery Embolization.
Justin and I a few hours after my BAE

Results:

  • CT scans showed two new Pulmonary Embolisms (PEs/blood clots) in my lungs.
  • Ultrasounds showed old and new clots and something the doctors need to wait for the radiologist to look into more. (I'll update about this when I find out)
  • X-rays showed two tubular objects in the lower left side of my lungs, possibly mucus plugs, and abdominal film looked fairly good.
  • Bronchial Artery Embolization stopped the hemoptysis! I'm still pretty sore from this procedure though.
They are repeating CT and x-ray later this week. PFT are dependent on how I feel.

Bacon sleeping with Mator
On a happier note: We got a PIG! Oink! ;) Bacon (Justin chose his name) is our miniature potbelly pig. He is absolutely adorable! He LOVES Mator and Mator is very tolerant of Bacon's piglet nature.
Bacon is 6 weeks old. He was born April 27. He weights about 4 pounds and eats 1/2 cup of food a day.
He is potty trained to either go in his litter box or to go outside with the dogs. He was the fastest potty trainer EVER! It took just a single day to train him!
Its rather comical to watch him as he follows Mator or Diesel around the yard, his tail wagging. He thinks he's a dog! Bacon loves to play with the dog toys as well!
We'll ask Mator, "Where's your piggy?" And he'll immediately jump up and start looking for Bacon.


 Unfortunately, we no longer have Dixie. She is better suited for a one dog home. Her new family is with a younger couple and their 18 month old son. We were sad to see her go, but also happy she is with a good family!

Diesel at 5.5 months
Diesel at 3 months

Baby Diesel is doing great! He just hit 6 months old this month! He is growing like CRAZY! His last weight was 44 lbs! And he likes to be a lazy bum. We have to push him a little sometimes to get him going, but once he's outside playing fetch he'll go for hours! He's still getting use to his BIG feet and often trips over them when he's running after the ball, but that doesn't stop him!


Me and Lucas 2009




I also want to say HAPPY (early) BIRTHDAY to my baby brother, Lucas! He will be turning 20 on MONDAY! No longer a teenager! Lucas and I have always been really close, and I am so sad I cannot be with him on his birthday this year! <3


That's all I've got for now!