About Me

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I'm Amber... Born July 15. I was born with a genetic disease called Cystic Fibrosis (CF). CF is a progressive disease of the lungs and also affects the digestive, reproductive, and endocrine systems. All my life I have been a fighter. I've had to fight for something most others don't even think about, to live and breathe from the day I was born. I'm stubborn and I can be a huge handful. I'm very strong willed, but easily pleased. I love putting a smile on peoples' faces and making them laugh. I believe in second, and sometimes third, chances. I wear my heart on my sleeve and I tend to trust too easily. My family and friends mean everything to me. <3  I try hard not to judge people because I hate when others judge me. I am who I am and that's all there is to it, but that doesn't mean I always like who I am...
 

Thursday, April 25, 2013

At my wits end....

This last month has been a difficult one. Between my tummy issues, my rapidly declining lung function, and various other personal/family issues I have really been tested emotionally. I have been visiting the Mayo for the past month. They've done several different tests/procedures to try and figure out what's going on in this belly of mine. An MRE showed an area of Intussusception in my small bowel which led to a balloon assisted endoscopy. The scope was done on Tuesday and I am currently waiting for results.

My lung function is definitely suffering from all this GI stuff as well since vesting is pretty painful. I saw 23% FEV1 about two weeks ago; this was an all time low. I've managed to get my numbers back up to 34% as of one week ago.

Is an answer too much ask for? I just want this all fixed!