OK... Soooo, I know I've been awful about keeping you all updated. Here's the last three weeks worth! I was admitted to the hospital via ER Sunday, April 28. During my stay I had another major GI bleed which led to yet another scope and capsule study, but this time they actually found something and were able to clip it and cauterize it! For the past four days, my hemoglobin has remained stable! I hope and pray that this is the end of the bleeding! Today, I am being discharged from my three week hospital stay. While in, I received antibiotics for extremely low PFTs, the lowest I've ever been. Amazingly, I was able to go above and beyond my baseline and goal yesterday when I had a repeat PFT! Words cannot even begin to describe how blessed I am! So many of you are the reasons I have fought this long, difficult battle and you will continue to be the reason I keep fighting. Yes, sometime I want to give up, lay down my weapons and wave my surrender flag, but I know so many people are praying for me and supporting me throughout my trials and triumphs. Most of all, I know GOD and my guardian angel are guiding me and showing me the way. I have made a promise to myself, my friends, my family, my future husband, and the child/children I've not yet been blessed with that I would never give up! No matter how tired I get, I WILL keep fighting. I will fight as long as it takes to be granted my miracle cure! I have faith and hope that someday, in my lifetime, God will answer my prayers, but should that not be his plan, I will graciously accept and follow Him in whatever direction he wants me to go.
I am going to try to update more often as I love sharing my triumphs with all of you. Your encouragement means everything! Thank you!
- I'm Amber... Born July 15. I was born with a genetic disease called Cystic Fibrosis (CF). CF is a progressive disease of the lungs and also affects the digestive, reproductive, and endocrine systems. All my life I have been a fighter. I've had to fight for something most others don't even think about, to live and breathe from the day I was born. I'm stubborn and I can be a huge handful. I'm very strong willed, but easily pleased. I love putting a smile on peoples' faces and making them laugh. I believe in second, and sometimes third, chances. I wear my heart on my sleeve and I tend to trust too easily. My family and friends mean everything to me. <3 I try hard not to judge people because I hate when others judge me. I am who I am and that's all there is to it, but that doesn't mean I always like who I am...