About Me

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I'm Amber... Born July 15. I was born with a genetic disease called Cystic Fibrosis (CF). CF is a progressive disease of the lungs and also affects the digestive, reproductive, and endocrine systems. All my life I have been a fighter. I've had to fight for something most others don't even think about, to live and breathe from the day I was born. I'm stubborn and I can be a huge handful. I'm very strong willed, but easily pleased. I love putting a smile on peoples' faces and making them laugh. I believe in second, and sometimes third, chances. I wear my heart on my sleeve and I tend to trust too easily. My family and friends mean everything to me. <3  I try hard not to judge people because I hate when others judge me. I am who I am and that's all there is to it, but that doesn't mean I always like who I am...
 

Wednesday, May 28, 2014

Beaches, Zoos, and UNC

Its been a little over a month since I last updated. So, here's what's been going on in the Walker world!

I was discharged from UNC last month with some pretty awesome PFTs! :) I was able to go home without IV antibiotics. At home, Justin has been doing more hand CPT/BDs in place of the vest. I feel like the vest isn't as effective as the pummeling. I am able to cough and get more junk out.

I am currently at UNC again. I had a pretty major drop in lung function in the past month. My doctors think it is a combination of the MRSA infection and the different types of allergens here in NC versus what I was used to in MN. They gave me a central line in my chest because my veins are pretty much non-existent now and because they are more than likely going to send me home on IV antibiotics. (YAY) I've also gotten my G-tube tract fixed while here! So I will probably be doing some more tube feeds at home for a while. I've been having extreme nausea/vomiting for the past 6 days which has prevented me from eating. I've also been running fevers the last few days. Docs aren't sure what's causing it. All my lab work is coming back normal so far.

We were able to make it to the beach two weekends ago! It was beautiful! I just wish we could have stayed longer! The boardwalk was really cool. There were tons of cool shops and they had a FUDGE shop! I got a 1/2 pound of smores fudge... it was almost gone before we got home!

The zoo was also a fun trip that same weekend! We visited Carolina Zoo for the day! As most of you know, animals are definitely one of my biggest passions in life. I would definitely own my own zoo, if I could!

That's about all I've got for now. Hope everyone has a fantastic day!