Busy does not even begin to describe the past month.
My beautiful grandmother, JoAnn, has been brought to sit with Jesus. She left us Tuesday, November 20 at 8:30am. We laid her to rest the following Monday, November 26. Never have I seen such a beautiful funeral!
She would have been 70 years old on November 24... She was four days shy of her birthday.
As hard as it is to swallow that she is now longer physically with us, I know she is looking down on us, protecting and watch over. I feel so lucky to have such an incredible angel.
 |
| Two of my lovely cousins: Julia and Alleena, and my beautiful grandma and I |
I ened up having Justin bring me to the local emergency room very late November 11/very early November 12 for hemoptysis and chest pain/pressure. The doctor seemed to think he knew EVERYTHING about CF, but had to ask a thousand questions about the disease that didn't even pertain to my specific case... Then proceeded to tell me that I had NO idea just how serious of a disease CF is. O.o
Anyway, he contacted the U of M and spoke to the on-call for pulmonary who gave me two options: 1.) Go directly to the U from Buffalo, or 2.) Call the clinic immediately in the morning to schedule an appointment. I chose option 2. They got me an appointment with the NP that same day.
My PFTs and weight were down, which I expected. At this time, the NP gave me two more options: 1.) Be admitted, or 2.) Do IV abx at home. I, again, chose two.
While trying to get everything set up for my PICC line to be place, I told the NP that I HAD to 100% get my line placed by Interventional Radiology because Vascular Access can no longer get my lines in, nor do they feel comfortable trying. What does the NP do? Schedule with Vascular... So, I ended up going home without a line and needed to go back to the U for line placement the next day. :P
After some complications getting my PICC in, they decided it would be "best" to place a tunnelled IJ PICC into my chest and thread it up through my neck and into my jugular vein.
I went back to clinic last thrusday to see if I still needed IV abx. My PFTs are staying the same so they added a fourth antibotic to my regimen. I have another appointment this coming Thursday, December 6.
Hopefully, it will be a better appointment...
Hey there Amber! Nice to "meet" you. I'm so glad that you found the CF blogroll, and I've added you to our list of CF bloggers. If you could go here (http://cfblogroll.blogspot.com/p/how-to-get-your-blog-listed.html) to get one of our buttons for your blog, that would be great!
ReplyDeleteI'm sorry to hear about your grandmother. One of my grandmas - who I was named after - passed away very young when I was 10, and it was tough! She still holds a very special place in my heart. Good luck, also, getting over your infection. It's such a rough time of year for us CFers!